Our Team

We're patients and their loved ones, from all around the world, plus doctors, nurses and more

Our Researchers

Leading doctors and scientists are using the Registry's data to advance fibrolamellar studies

Our Goals

Earlier diagnostics. Better treatments. And, one day, a cure

Spark Research By Joining

We speed research by having fibrolamellar patients around the world share their stories

Your Medical Journey

May contain important clues for scientists


Patients and families across the globe are helping

Diagnostics & Treatments

Earlier diagnostics and better treatments are what we’re fighting for


Share only with the researchers you wish

We are trusted by

Leading Scientists & Doctors

Multiple research studies are now in progress based on FibroRegistry data

FAQ: Fibrolamellar Key Facts

Newly diagnosed? Get the key facts you need

FAQ: The Registry Overview

Get all your FibroRegistry questions answered

FAQ: For Researchers Use Our Data

We make it fast and easy to apply to study our data

What Registry members say

Join our nearly 200 participants around the world fighting fibrolamellar together